Gayle's Notes: Recent Comments

Comment on So much news on the RSD patient front . . . .

Irene — Tue, 28 Jul 2009 15:07:50 GMT

Thanks so much for the updates. It is encouraging for those of us still suffering without any solution.

Comment on CELEBRATION FOR US . . . . AND PRAYERS FOR SO MANY OTHERS

sandra — Mon, 04 May 2009 22:11:11 GMT

hello, can you please let me know Dr Keifers address in Germany, as my daughter has full bodies crps and she wants to enquire about the coma treatment for this thank you, I hope you can help.

Comment on Former Ketamine Coma Patient #45 in the IntensiveStation, Klinikum Saarbruecken IS DOING GREAT!!!

Sherrie Gregory — Tue, 20 Jan 2009 06:21:12 GMT

I have had CRPS type two for a year now... following foot surgery... last of many. I am at my wits end to find an answer. I have been hoping for the low dose ketamine done by Dr. Harbut. Have you heard of his work? He seems to have good success with it and you do not go into a coma. He is in Hot Springs Arkansas currently. I have tried many, many drugs.. back to the oxycodone..have had the blocks, etc..and nothing did any good and mostly had lots of side effects. Seems like the same story for everyone. I would love to hear of your experience, how you managed and are you aware of the hospital in Monterey Mexico that is doing the coma as well?

Many thanks and so happy to hear you are doing well.

Sherrie

Comment on CELEBRATION FOR US . . . . AND PRAYERS FOR SO MANY OTHERS

Lindsay Spengler — Sun, 14 Dec 2008 04:03:22 GMT

Hey Gayle!

I want to thank you for all the work that you are doing to help get care for so many with RSD that need it! And for working to something else other than the ketamine coma to get people with RSD to complete remission. If I can help, please let me know as I will be happy to help in any way that I can. God Bless you and GO TRACY!!! :)

Love,

Lindsay Spengler

Comment on Update . . . . SAVE THIS DATE - MARCH 28, 2009 - The coma cannot be the only answer!!

Marsha — Fri, 10 Oct 2008 07:09:53 GMT

Gayle,

Please e-mail me. I have had RSD for over 5 years, and I live in NYC. I would like to talk some more about a couple of things . . . but I would rather not post them here. Get back to me when you can. Thanks!

L'shana Tova,
Marsha

Comment on So much news on the RSD patient front . . . .

phyllis smith — Mon, 29 Sep 2008 07:59:24 GMT

Your blog was very informative, I am thankful for the people that were able to get help in Germany and Mexico. Insurance Companies should realize that People with RSD all need help to put out "The flame". I have full body RSD and hope to go to Germany or Mexico for the Coma treatment one day in hopes of a remission, I pray for all of you and God Bless.

Comment on And tonight she walked the Willow Grove Mall!

Judy Friedman — Sun, 02 Dec 2007 14:22:03 GMT

Gayle-I am so glad you are continuing these notes! In this season of miracles, lighting the Chanukah candles will be especially meaningful to all of you this year! May this year ahead bring only continued health for Tracy, and love and peace for everyone! Judy

Comment on And tonight she walked the Willow Grove Mall!

Gayle — Sat, 01 Dec 2007 04:14:02 GMT

Jean, you can contact me personally at gayle.brooks@verizon.net. We are certainly going to proceed to with awareness efforts, as well as fundraising. I had not thought about a support group. That will have to be Tracy's decision, but I will refer your comments to her. I certainly wish you the best, and hope that you can go forward with whatever treatment Dr. Schwartzman thinks is best for you. All cases are different, and I certainly would not want to recommend a treatment that may not be right for you personally. By the way, how did you hear about our site? Be assured I will continue to post about Tracy's progress. And our prayers are with you also. Gayle

Comment on And tonight she walked the Willow Grove Mall!

Jean — Fri, 30 Nov 2007 17:45:16 GMT

Hi, I have been posting regularly however in a different area. I am so happy for the girls that they are pain free and getting their strenght back. I mentioned in an earlier posting I am a patient of Dr. Schwartzman but never followed through with the Ketamine. The girls have given me hope that someday I may be painfree and back to living normal. How wonderful it would be to have a family member touch me without backing off afraid they will hurt me. I certainly hope you follow through and make an awareness/support group so others may benefit from what the girls have suffered through. Wouldn't it be wonderful if all could be cured of this horrific disease. My best to all and keep up the great work girls!

Comment on HOME AT LAST!!!!!!!!!!!!!!!!!! AND IT FEELS SO GOOD FOR ALL OF US!!!!

Judy Friedman — Wed, 21 Nov 2007 16:41:41 GMT

Gayle-it is hard not to cry reading your story! I am so glad you and Tracey are HOME. Try Carnation Instant Breakfast with milk (either hot or cold) for extra nutrition. There are also some great high protein granola/cereal bars out there. Much love to everyone..Judy