CELEBRATION FOR US . . . . AND PRAYERS FOR SO MANY OTHERS
The entry below was written on November 2 and I just realized as I went to update today, that it was never posted, and was just waiting for me to appear and press "publish". Sorry about that. I've begun an update today (12/12/08), but will probably not post it till tomorrow.
We've had milestones to celebrate in our family. Carly celebrated her 30th with a great surprise party with her friends, organized by Tracy. Never could Tracy have done that a year ago!!! And unbeknownst to Tracy, she also had a surprise cake at the party. Carly's party was on October 17th (before her actual BD) and this was the first anniversary of Tracy's going into the coma. October 31st, Halloween, marked the date she truly awakened after her coma, so we are thrilled to say,
TRACY HAS PASSED THE ONE YEAR MARK!!!
This is a very special marker for all of us, even those who have yet to make it, for it lets people know that there is hope!
I am happy to say that the two young women who went to Germany in early October - Brandy and Elizabeth - are getting ready to come home, and are free of pain from RSD!!!! With their parents, they have even spent time sight-seeing in Germany, and have met the next two RSD patients there to participate in the study. It is a double-edged sword that one of these people is Kyle - for his RSD did return with a vengence, although he is still not as bad as before the first coma. He will be entering his SECOND COMA to stop the downward spiral and bring him back, since he did initially have good results from the first coma protocol. He's not as bad as before his first coma, we pray that he'll not only do well, but not be re-injured or have any other setbacks this time. YOU GO, KYLE!!
WE NEED TO SUPPORT THE ONGOING RSD/CRPS RESEARCH! YOU CAN HAVE A PART IN HELPING PEOPLE WHO NOW WAKE UP IN EXCRUCIATING PAIN EVERY DAY OF THEIR LIVES WITH NOTHING TO LOOK FORWARD TO THAN JUST GETTING THROUGH THE DAY. WITH ADVANCED R.S.D., THEY LOSE THEIR ABILITY TO FUNCTION - THE PAIN IS JUST ALL ENCOMPASSING. MANY LOSE THEIR WILL TO GO ON. WE HAVE TO STOP THIS, AND EVERY DONATION BRINGS US CLOSER TO THAT END. YOU CAN HELP BRING THEM BACK TO PRODUCTIVE LIVES. TRACY IS NOW WORKING FULL-TIME AS A SPECIAL EDUCATION AND HER STUDENTS ARE SO LUCKY TO HAVE A BRIGHT, BUBBLY AND ENERGETIC TEACHER! IT MAKES DOLLARS SENSE TOO - LET'S BRING THESE YOUNG PEOPLE BACK TO PRODUCTIVE LIVES AGAIN.
PLEASE SEND DONATIONS IN HONOR OF TRACY'S RECOVERY AND WITH HOPE FOR THE OTHERS WHO CONTINUE THIS HORRENDOUS NIGHTMARE OF PAIN . . . . Tracy is proof that this does not have to be!!!!
Sadly, I need to let you know that Tracy's coma partner, JUDY, has not been doing well. The RSD is BACK, and differently than before. She's having trouble eating because of the burning pain in her esophagus/abdomen, and is losing weight. She's fighting to stay active, but has been in and out of hospitals as doctors try to get everything under control to a point where she'll be able to return to Germany for a second coma. I've been downtown to see Judy each time she's been in for treatment in Philly, and I know she's looking forward to going back for another "sleep" to get everything back under control. She knows we wish nothing less than Tracy's results for her. Judy feels that Tracy's response is what gives her hope for recovery!! We are waiting for test results to tell whether she's ready to go now. Remember, she has to able to undergo the ketamine, and that has been part of her problem - that her liver enzymes were too high for her to undergo more ketamine.
We so look forward to a cure that does not involve Ketamine, for so many reasons! And at the same time, we look forward to Ketamine being approved in the U.S. so that people with advanced cases will not have to seek treatment in other countries. Currently, to my knowledge, it's only being done in Germany and Mexico. Good luck to my new FACEBOOK "FRIEND", Jennifer Leader, who's just left for the coma in Mexico. She's a beautiful young woman with a very supportive husband by her side.
There are actually millions of people who needlessly suffer excruciating pain every day of their lives. We need to help them get their lives back. Please help us spread Awareness so people will not spend years going from physician to physician just to seek a diagnosis, and then once they have it, not know where to turn. And we need to develop a safer, easier, more predictable cure than the Ketamine coma. But right now, for advanced cases, it's all we have. Let's get more cures so that we can get it approved for use here!!!
Please keep Judy in your prayers as she awaits the possibility of a second trip to Germany, another ketamine coma with hopefully lasting results. And to Kyle, Elizabeth, Brandy, Alessa, Melissa, Carrie, Lindsay, Margot, and so many others who've stepped up for the possibility of cure through the ketamine coma . . . . May you continue to do well and gain strength and seize more of life each day.
G-d bless.
Gayle
We've had milestones to celebrate in our family. Carly celebrated her 30th with a great surprise party with her friends, organized by Tracy. Never could Tracy have done that a year ago!!! And unbeknownst to Tracy, she also had a surprise cake at the party. Carly's party was on October 17th (before her actual BD) and this was the first anniversary of Tracy's going into the coma. October 31st, Halloween, marked the date she truly awakened after her coma, so we are thrilled to say,
TRACY HAS PASSED THE ONE YEAR MARK!!!
This is a very special marker for all of us, even those who have yet to make it, for it lets people know that there is hope!
I am happy to say that the two young women who went to Germany in early October - Brandy and Elizabeth - are getting ready to come home, and are free of pain from RSD!!!! With their parents, they have even spent time sight-seeing in Germany, and have met the next two RSD patients there to participate in the study. It is a double-edged sword that one of these people is Kyle - for his RSD did return with a vengence, although he is still not as bad as before the first coma. He will be entering his SECOND COMA to stop the downward spiral and bring him back, since he did initially have good results from the first coma protocol. He's not as bad as before his first coma, we pray that he'll not only do well, but not be re-injured or have any other setbacks this time. YOU GO, KYLE!!
WE NEED TO SUPPORT THE ONGOING RSD/CRPS RESEARCH! YOU CAN HAVE A PART IN HELPING PEOPLE WHO NOW WAKE UP IN EXCRUCIATING PAIN EVERY DAY OF THEIR LIVES WITH NOTHING TO LOOK FORWARD TO THAN JUST GETTING THROUGH THE DAY. WITH ADVANCED R.S.D., THEY LOSE THEIR ABILITY TO FUNCTION - THE PAIN IS JUST ALL ENCOMPASSING. MANY LOSE THEIR WILL TO GO ON. WE HAVE TO STOP THIS, AND EVERY DONATION BRINGS US CLOSER TO THAT END. YOU CAN HELP BRING THEM BACK TO PRODUCTIVE LIVES. TRACY IS NOW WORKING FULL-TIME AS A SPECIAL EDUCATION AND HER STUDENTS ARE SO LUCKY TO HAVE A BRIGHT, BUBBLY AND ENERGETIC TEACHER! IT MAKES DOLLARS SENSE TOO - LET'S BRING THESE YOUNG PEOPLE BACK TO PRODUCTIVE LIVES AGAIN.
PLEASE SEND DONATIONS IN HONOR OF TRACY'S RECOVERY AND WITH HOPE FOR THE OTHERS WHO CONTINUE THIS HORRENDOUS NIGHTMARE OF PAIN . . . . Tracy is proof that this does not have to be!!!!
Sadly, I need to let you know that Tracy's coma partner, JUDY, has not been doing well. The RSD is BACK, and differently than before. She's having trouble eating because of the burning pain in her esophagus/abdomen, and is losing weight. She's fighting to stay active, but has been in and out of hospitals as doctors try to get everything under control to a point where she'll be able to return to Germany for a second coma. I've been downtown to see Judy each time she's been in for treatment in Philly, and I know she's looking forward to going back for another "sleep" to get everything back under control. She knows we wish nothing less than Tracy's results for her. Judy feels that Tracy's response is what gives her hope for recovery!! We are waiting for test results to tell whether she's ready to go now. Remember, she has to able to undergo the ketamine, and that has been part of her problem - that her liver enzymes were too high for her to undergo more ketamine.
We so look forward to a cure that does not involve Ketamine, for so many reasons! And at the same time, we look forward to Ketamine being approved in the U.S. so that people with advanced cases will not have to seek treatment in other countries. Currently, to my knowledge, it's only being done in Germany and Mexico. Good luck to my new FACEBOOK "FRIEND", Jennifer Leader, who's just left for the coma in Mexico. She's a beautiful young woman with a very supportive husband by her side.
There are actually millions of people who needlessly suffer excruciating pain every day of their lives. We need to help them get their lives back. Please help us spread Awareness so people will not spend years going from physician to physician just to seek a diagnosis, and then once they have it, not know where to turn. And we need to develop a safer, easier, more predictable cure than the Ketamine coma. But right now, for advanced cases, it's all we have. Let's get more cures so that we can get it approved for use here!!!
Please keep Judy in your prayers as she awaits the possibility of a second trip to Germany, another ketamine coma with hopefully lasting results. And to Kyle, Elizabeth, Brandy, Alessa, Melissa, Carrie, Lindsay, Margot, and so many others who've stepped up for the possibility of cure through the ketamine coma . . . . May you continue to do well and gain strength and seize more of life each day.
G-d bless.
Gayle
Hey Gayle!
I want to thank you for all the work that you are doing to help get care for so many with RSD that need it! And for working to something else other than the ketamine coma to get people with RSD to complete remission. If I can help, please let me know as I will be happy to help in any way that I can. God Bless you and GO TRACY!!!
Love,
Lindsay Spengler
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hello, can you please let me know Dr Keifers address in Germany, as my daughter has full bodies crps and she wants to enquire about the coma treatment for this thank you, I hope you can help.
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