The Foundation is Now Ready to accept donations. Info follows:
Before I give my personal update on Tracy today, which you'll find in my next message, I am happy to say that the BROOKS FAMILY FOUNDATION FOR RSD/CRPS is official! Set up by our family in gratitude for Tracy's treatment via the experimental protocol established by Dr. Schwartzman and Dr. Rohr in Germany and her ongoing recovery from the effects, all necessary declarations/paperwork have been filed with the State and Federal authorities to form a charitable foundation [501(c)(3)]. All donations to the foundation are, of course, tax deductible. Our purpose is to raise funding for reflex sympathetic dystropy (RSD)/chronic regional pain syndrome (CRPS)* awareness, research and treatment. Our hope is to promote awareness so that people suffering unexplained pain can get diagnosed much sooner than occurred with both Tracy and Judy (and so many others we've heard and from and about), including those who remain undiagnosed and continue to suffer at this time. Funds are desperately needed for research - to work toward easier, safer, and more sure treatments for this most debilitating, life-altering syndrome. As you know RSD/CRPS can happen to any one of us, and generally begins with some sort of accident/surgery/insult to the body. It can and has resulted from incidents as simple as a splinter, a sprained limb (or even finger or toe), a spider bite. While the initial injury, etc. can be very minimal and/or totally healed, the pain continues, becoming worse with time and often spreading to opposing limbs and throughout the body. We need to have the means to eradicate this horrendous neurological condition, before it takes over more lives and help those whose lives have already been so severely impacted.
As we approach the end of this calendar year, we are so hoping you who've been following Tracy (and Judy's) progress will find it in your hearts to give generously to help fund treatment and an easier, more predictable treatment for advanced RSD/CRPS.
Your tax-deductible donations can be sent to:
Brooks Family Foundation for RSD/CRPS
832 Second Street Pike - Suite 3
Richboro, PA 18954
Funding, at this point, will be directed to what we believe is the cutting edge in RSD treatment/research - to Dr. Schwartzman's research at Drexel University Medical School/Hahnemann Hospital. He has asked me for $500,000. I'm hoping we can raise this money within the next year, but I certainly can't accomplish this alone. We will need your direct dollars to do this and media support to broaden our effort. We will begin working on this asap, but we want you to be able to gain a deduction for 2007 as well; this is why I asked you to save us a check in my previous update. Now we're ready to accept it!! Please also check with your employer to see if they have a matching program - many corporations will match employees' charitable donations up to a certain amount, and it would be truly amazing to double a portion of the donations we receive.
We (Tracy, Carly, Rick and I) thank you in advance for your help with getting this needed funding off the ground. So many have asked what they could do for Tracy and I've told you to wait. Well, this is IT!! This is the best way to help celebrate her courage and her progress to date. And for those of you who have tuned in because you have a family member or friend with RSD and you want to help them, this money will be directed to the cutting edge of research and to create awareness so that others (which could be any one of us) will be diagnosed sooner, while treatment is hopefully easier. Let's work to ERASE THE PAIN OF RSD!
With love, gratitude, and hopes/prayers for the future,
Gayle, Rick, Carly and Tracy
*Chronic Regional Pain Syndrome (CRPS) is the newer and more preferred among researchers name for what we generally refer to as RSD, as it allows for more definitive delineations between descriptive types/level of involvement. As this name becomes better known, the RSD portion of our name may be dropped, but for now it allows for more ready recognition and as such, will remain.
As we approach the end of this calendar year, we are so hoping you who've been following Tracy (and Judy's) progress will find it in your hearts to give generously to help fund treatment and an easier, more predictable treatment for advanced RSD/CRPS.
Your tax-deductible donations can be sent to:
Brooks Family Foundation for RSD/CRPS
832 Second Street Pike - Suite 3
Richboro, PA 18954
Funding, at this point, will be directed to what we believe is the cutting edge in RSD treatment/research - to Dr. Schwartzman's research at Drexel University Medical School/Hahnemann Hospital. He has asked me for $500,000. I'm hoping we can raise this money within the next year, but I certainly can't accomplish this alone. We will need your direct dollars to do this and media support to broaden our effort. We will begin working on this asap, but we want you to be able to gain a deduction for 2007 as well; this is why I asked you to save us a check in my previous update. Now we're ready to accept it!! Please also check with your employer to see if they have a matching program - many corporations will match employees' charitable donations up to a certain amount, and it would be truly amazing to double a portion of the donations we receive.
We (Tracy, Carly, Rick and I) thank you in advance for your help with getting this needed funding off the ground. So many have asked what they could do for Tracy and I've told you to wait. Well, this is IT!! This is the best way to help celebrate her courage and her progress to date. And for those of you who have tuned in because you have a family member or friend with RSD and you want to help them, this money will be directed to the cutting edge of research and to create awareness so that others (which could be any one of us) will be diagnosed sooner, while treatment is hopefully easier. Let's work to ERASE THE PAIN OF RSD!
With love, gratitude, and hopes/prayers for the future,
Gayle, Rick, Carly and Tracy
*Chronic Regional Pain Syndrome (CRPS) is the newer and more preferred among researchers name for what we generally refer to as RSD, as it allows for more definitive delineations between descriptive types/level of involvement. As this name becomes better known, the RSD portion of our name may be dropped, but for now it allows for more ready recognition and as such, will remain.
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